treejay Posted September 25, 2015 Share Posted September 25, 2015 What's the deal with this diagnosis? I have seen several patients in that past year that have been given this diagnosis but there seems to be quite the controversy whether it's a valid and recognized disease? If anything, it certainly seems more like a "syndrome" What are folks thoughts on this diagnosis? I'm sure there may be differing opinions. I'm trying to decide what my opinion is. Here is the CDC's take on it: http://www.cdc.gov/lyme/postLDS/ Link to comment Share on other sites More sharing options...
Administrator rev ronin Posted September 25, 2015 Administrator Share Posted September 25, 2015 It's this decade's fibromyalgia? That is, something that, at its core was a real diagnosis describing a real problem with vague symptoms... but that has since been monetized and misapplied to any number of patients who never really had the disease originally described by that diagnosis, but do have vague symptoms. Link to comment Share on other sites More sharing options...
NLRP3 Posted September 26, 2015 Share Posted September 26, 2015 It is not recognized by the IDSA. It is a diagnosis made by naturopaths and quacks of various ilks. Cannot confirm by PCR, Culture or IgM for acute infection. Real symptoms, not a real diagnosis. Link to comment Share on other sites More sharing options...
Moderator True Anomaly Posted September 26, 2015 Moderator Share Posted September 26, 2015 Have run into one patient with this claim- they were on a YEAR of IV abx prn through a PICC. Link to comment Share on other sites More sharing options...
Moderator EMEDPA Posted September 26, 2015 Moderator Share Posted September 26, 2015 Have run into one patient with this claim- they were on a YEAR of IV abx prn through a PICC. that's like my pt who told me she spent a week in the ICU for terminal, end stage fibromyalgia....guessing it was a psych admit... Link to comment Share on other sites More sharing options...
loliz Posted September 27, 2015 Share Posted September 27, 2015 Reminds me of a girl I went to college with... every time she had a bad day, poor test grade, missed an assignment or had a cold she would just look forlorn and say.. ooohhh it must be my Lyme acting up again... Link to comment Share on other sites More sharing options...
Moderator ventana Posted September 28, 2015 Moderator Share Posted September 28, 2015 there is something there, probably psych, maybe some disease we do not know about yet..... but chronic lyme disease does not exist..... Link to comment Share on other sites More sharing options...
sk732 Posted September 28, 2015 Share Posted September 28, 2015 Terminal end stage fibromyalgia...LMFAO. That sounds like a real Cocoa Puffs eater...and that gave me a good laugh for the day :-D Link to comment Share on other sites More sharing options...
whoRyou Posted September 28, 2015 Share Posted September 28, 2015 Terminal end stage fibromyalgia...LMFAO. That sounds like a real Cocoa Puffs eater...and that gave me a good laugh for the day :-D HAHA Your statement made me smile too Link to comment Share on other sites More sharing options...
JB11 Posted September 28, 2015 Share Posted September 28, 2015 Reminds me of a girl I went to college with... every time she had a bad day, poor test grade, missed an assignment or had a cold she would just look forlorn and say.. ooohhh it must be my Lyme acting up again... Nail on the head Link to comment Share on other sites More sharing options...
GetMeOuttaThisMess Posted September 28, 2015 Share Posted September 28, 2015 C'mon folks, take science seriously. Those of us in the know are aware that chronic lyme disease is the result of untreated strep pharyngitis! Link to comment Share on other sites More sharing options...
sk732 Posted September 28, 2015 Share Posted September 28, 2015 Makes you wonder about all the money being made off of alleged chronic Lyme sufferers...my dog was vaccinated against Lyme, so why can't we offer a vaccine to humans? There is enough of a fright factor out there regarding it, so it would sell quite quickly. If I had a dime for every person that came to me panicking in the past 4 years with a tick bite, I wouldn't need to work... SK Link to comment Share on other sites More sharing options...
treejay Posted October 2, 2015 Author Share Posted October 2, 2015 Well, the thing is, chronic lyme disease is unlike other diagnoses in that there is an entire cadre of people (medical doctors and others) who are trying to just get this to be a recognized diagnosis, and trying to educate clinicians on their perspective on how to diagnose and treat this. I mean, this is unlike any other disease process I have ever encountered. This organisation seems to be the major force behind it: http://www.ilads.org/ Link to comment Share on other sites More sharing options...
treejay Posted October 2, 2015 Author Share Posted October 2, 2015 If this is quackery (which it may be), this seems like quackery at an unprecedented level in the current time, no? Link to comment Share on other sites More sharing options...
NLRP3 Posted October 2, 2015 Share Posted October 2, 2015 There are homeopathic formulations on the shelves of most pharmacies, major academic medical centers have naturopaths and accupuncturists on staff, chiropractors are ordering xrays and correcting non-existent subluxations with impunity. Hell with two doctors on stage at the recent republican primary debates no one stood up and said vaccines were safe! I would say that this is not unprecedented, in fact it is par for the course in our society. Link to comment Share on other sites More sharing options...
treejay Posted October 2, 2015 Author Share Posted October 2, 2015 Well, first of all, there is evidence in the literature that supports benefit from chiropractics and acupuncture. Not to mention the hoards of anecdotal evidence that exists. Additionally, naturopathy has a role, especially for more of the functional type disease states (think IBS, fibromyalgia, chronic pelvic pain syndrome, "chronic lyme disease", etc). Anyone who discounts that entire profession discredits themself IMO for not looking beyond their own training to other modalities which can improve patient health and quality of life. And as far as the republican candidates, well, I cannot defend them.... they are idiots. especially carson. Link to comment Share on other sites More sharing options...
treejay Posted October 2, 2015 Author Share Posted October 2, 2015 oh.... and there are cigarettes and booze on the shelves of most major pharmacies, so that doesn't say much Link to comment Share on other sites More sharing options...
NLRP3 Posted October 2, 2015 Share Posted October 2, 2015 http://www.cochrane.org/CD005319/MUSKEL_acupuncture-for-shoulder-pain http://www.cochrane.org/CD004046/DEPRESSN_acupuncture-for-depression http://www.cochrane.org/CD005062/EPILEPSY_acupuncture-for-epilepsy http://www.cochrane.org/CD007070/MUSKEL_acupuncture-for-fibromyalgia The theme is consistent. The more quantitative the study, the more rigorous the controls and the more objective the outcome the less effect is observed. Furthermore for those who advocate that placebo is an ok way to go, this is an ethically dubious stance as deception is inherent in placebo. Furthermore we would never introduce a drug or a procedure in the hospital without FDA approval, why do these people get to? Cigarettes and alcohol are not marketed as drugs to fix problems, homeopathic remedies are. I am not saying all naturopaths or chiropractors are bad. But a profession that integrates non-scientific teachings into it's curriculum is suspect as best and should be viewed with caution and extreme skepticism. I have no bias towards "alternative or complementary" modalities, however these are false dichotomies in my mind. There are modalities that work, aka medicine, and then everything else. Link to comment Share on other sites More sharing options...
Guest Paula Posted October 3, 2015 Share Posted October 3, 2015 I have a patient who has post lyme disease arthralgia. he will take serial antibiotics when he thinks the lyme disease is flared up again. I am managing his other issues and he sees a "specialist" for his lyme disease. Ok by me. I'm pretty sure the specialist is a homeopath, chiropractor and another person who has a medical license. ''I just want to know when he gets the abx prescribed as they might negatively impact his other issues. Just waiting for c.diff to come along. I will need to manage that! Link to comment Share on other sites More sharing options...
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