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medical marijuana for Dravet's syndrome


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I think it's sad that so many people see this thread yet don't comment. I understand but I don't care. I am for the well-being of that child. That is my sworn oath and it is a sacred one that is beyond programs. Just as an officer of the law will fight to protect, so will I. This one is also impressive, although it comes with a graphic warning: http://www.cnn.com/video/#/video/health/2013/01/24/dnt-pot-helps-kid-with-autism.kptv?iref=allsearch

 

This is huge.

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Interesting question. I would first say, it doesn't look like they need it to? I would trust the planet before I would humans anyhow, based on evidence so far, similarly to sugar and artificial sweeteners. If it ain't broke, don't fix it? Where does the line stand between MD and ND which designates that you have to take a pill versus drink a tea? Yes, Marinol is expensive.

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Guest Paula

In Michigan medical marijuana is legal and one of the indications is for seizures. Not for underage tho, have to be adult to get a card. Many of my adolescent patients use marijuana frequently along with their parents, are not doing well in school, live in less than the best conditions, and are not using marijuana for seizures.

 

Personally, I do not recommend medical marijuana and am prohibited from doing so as I work on federal lands.

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In California only a MD or DO can recommend, although I can refer for a recommendation if a situation warrants. I'm sure that if a patient such as one of those in the links above came across your path that your attitude would be the same as the Pediatric Neurologist in the video, that the main goal is to help the patient. I agree with the father who states that the choice was obvious in spite of any "unknown long term effects". How many drugs cause damage, even death, after release to market by the DEA and FDA, even to children? This is far from that level of concern and should be viewed for its therapeutic values when appropriate in such situations.

 

Federal lands, yes, I've worked on federal lands before. A huge amount of alcohol abuse ... we had to admit a 22 year old for renal and hepatic failure. Too bad there wasn't more prohibiting of that. I don't know too many natives who have two thousand dollars each month for Marinol. Maybe in this type of situation you could get coverage approval tho, but there's no telling if it would have the same effect.

 

I'm looking forward to the day when marijuana is no longer Schedule I so that it can be studied and its properties utilized to a full medical benefit for society. As the AAP representative stated, little is known about cannabanoids. But what is known shows little to no indication for prevention of treatment in a severe case such as these.

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Guest Paula

There are exceptions that can be considered.........and we have one young patient with seizures and a rare genetic disorder with a short life expectancy. I just may talk to her Mom next time they are in........they have about 7 specialists involved in the care and all out of state. But, it might be worth a try to have Mom broach the subject with the pediatric neurologist.

 

There is so much we (medical research, genetics, doctors, etc.) just don't know and appropriate research is certainly needed.

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  • 4 weeks later...
I think it's sad that so many people see this thread yet don't comment. I understand but I don't care. I am for the well-being of that child. That is my sworn oath and it is a sacred one that is beyond programs. Just as an officer of the law will fight to protect, so will I. This one is also impressive, although it comes with a graphic warning: http://www.cnn.com/video/#/video/health/2013/01/24/dnt-pot-helps-kid-with-autism.kptv?iref=allsearch

 

This is huge.

In Colorado there are several high CBD strains being used with great success on children with Dravet syndrome. It is administered orally.

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I think it's sad that so many people see this thread yet don't comment. I understand but I don't care. I am for the well-being of that child. That is my sworn oath and it is a sacred one that is beyond programs. Just as an officer of the law will fight to protect, so will I. This one is also impressive, although it comes with a graphic warning: http://www.cnn.com/video/#/video/health/2013/01/24/dnt-pot-helps-kid-with-autism.kptv?iref=allsearch

 

This is huge.

In Colorado there are several high CBD strains being used with great success on children with Dravet syndrome. It is administered orally.

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  • 2 months later...

A recent study from UC Irvine regarding the role of endocanabinoids in the brain and the relation to Fragile X and autism:

 

http://www.sciencedaily.com/releases/2013/04/130411123852.htm

http://www.today.uci.edu/news/2012/09/nr_fragilex_120920.php

 

An excellent new video from the Washington Post reporting on marijuana for medical treatment of epilepsy in children:

http://www.washingtonpost.com/video/thefold/medical-marijuana-renews-hope-for-children-suffering-from-seizures/2013/04/24/4eb5419e-acdb-11e2-a8b9-2a63d75b5459_video.html

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